It has been 7 weeks since my surgery. Two weeks after surgery I went for my post op appointment. The surgeon told me there was only one small infected lymph node under my collar bone that he found and removed. He looked around the entire side of my left neck, […]
Yearly Archives: 2019
A quick update on my surgery. Last month my doctor was so kind to put me on disability. On Tuesday, September 24th I will be having a full neck dissection at Loma Linda University Hospital to remove all lymph nodes in my neck. This surgery is at the request […]
Update for 9/17/19
Just left my Endocrinologist at UCLA. The whole body scans shows multiple small “light ups” in my neck. Scan also shows a spot In my lower sternum. It’s hard to pinpoint due to limitations with this type of scan. The doctor does have a slight concern because this spot was […]
Update for 7-9-19
Yesterday, Friday, I found out that my numbers have doubled since the last blood test which would indicate an increase of the infection. Loma Linda Hospital is refusing to follow the instructions of my doctor so I will be going to UCLA for the shots. At this point the insurance […]
Update for June 8, 2019
It’s official. I am doing the RAI (Radioactive Iodine pill). I have an appointment with the endocrinologist at Loma Linda on May 30th to go over when this will take place. Meanwhile I have started the LID (Low Iodine diet) I am hopping I will only be on this diet […]
Update for 5-20-19
In January my thyroglobulin count was 66, we did a biopsy since numbers doubled from November. Three weeks ago we did a biopsy of several lymph nodes that came up negative for Cancer. There is somewhat of a dilemma regarding what to do next. For that reason, my surgeon presented […]
Update for May 1, 2019
On January 29th I saw my Endocrinologist at UCLA. He expressed his concerns. Based on the most recent scans, he feels there are more infected lymph nodes in my neck. On Monday, February 4th I was supposed to have a biopsy on the lymph node they found under my clavicle. […]
Update for 2-6-19
I had a CT scan on Friday, January 18. On January 23 I saw the surgeon for results. I have a 9mm lymph node underneath my clavicle. That size is equivalent to 9 dimes stacked on top of each other. My Doctor ordered an ultrasound biopsy. Once it comes back […]
Update for 1-25-19
I just had my full body scan. The results came back much faster than expected. It’s good and medium news. They found ONLY one mass about 3 cm under my clavicle. The next step will be a new CT scan. I feel ok about this, at least we know why […]